Claire Wineland, who inspired hundreds of thousands of people with her YouTube videos, social media posts, and lectures chronicling her lifelong struggle with cystic fibrosis, died Sunday of a stroke a week after she received a lung transplant.
Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. I've spent the past year just barely holding myself above ground- juggling being sick with the deep incessant need in me to do something of value with my time. But instead of wallowing in her situation, Wineland used social media platforms, like Instagram and YouTube, to pipe out the hard details of her life to the public.
Over the course of her life, she gave hope to millions of people with her inspirational talks, videos, and the creation of her foundation, Claire's Place Foundation.
By the age of 13 she had set up a foundation to help those with cystic fibrosis.
Her family later made a decision to take the vlogger, who was diagnosed with cystic fibrosis at birth, off life support.
She has suffered a stroke after a successful double lung transplant on 26 August. Claire suffered a stroke from a blood clot and never emerged from the medically-induced coma that followed, the CNN reported.
Wineland was not in any pain, according to the foundation.
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"I was devastated. But when we got to the ICU in San Diego I witnessed what I can only describe as one of the purest demonstrations of love I had ever seen".
Ms McHolm said Wineland was "loved all over the world" and a "red hot spark of inspiration and joy". Rest in peace, Claire.
The social media personality was born with the inherited disease. "But if we go through life and try to make something of ourselves, maybe one day we can realize it's actually a gift".
Wineland and her family started the foundation following a routine surgery in 2010 after which she almost lost her life, according to the organization's website. "Everyone has been scolding me for wanting to stay living on my own, for wanting to move to different side of town and find a home while being on the transplant list." why not just wait until after the surgery to try and start your life?".
Claire since childhood, struggled with cystic fibrosis, or mucoviscidosis, is a hereditary disease that causes malfunction of the endocrine glands, that eventually leads to death. It creates too much mucus in the organs, predominantly affecting the lungs.
Throughout her teens, Wineland's YouTube videos offered an intimate look at her life.
What people said about her: "In Claire fashion, she is an organ donor". She had an awesome spirit and was wise beyond her years.